We found out she had another episode of CAPS (catastrophic antiphospholipid syndrome). She was extremely close to a stroke, and they added heart failure to the list. She also had another blood clot this time on the right side of her heart and multiple clots in her lungs. It was scary, she felt and looked so sick.
In case you didn’t know we as a family are extremely close. My sister and I, even closer. So when one of us is missing at home, it feels like a big chunk of us is gone.
Kim wasn’t feeling good and I kept (annoyingly) calling my mom. I could NOT sleep thinking about her and wanting to know what was wrong. They then told us they have to transfer her to another hospital which is a bit of a drive away. I was starting to not feel good, We were scheduled for our IVIG treatment that week which we get monthly and was long over due. All I wanted to do was cancel life and go with my sister.
That is usually what we do, drop everything and focus on who ever is sick. This time we couldn’t, I berely had any oxygen tanks and without my treatment I could NOT expose myself. My parents kept switching turns in the hospital, plus we would FaceTime like crazy.
The weather wasn’t on our side either it kept raining- well POURING! My sister would have anxiety attacks when we weren’t around and having to comfort her through a screen when all you want to do is hug her, was hard.
I had scheduled my oxygen delivery and we missed it TWICE! My luck! We had some problems with the plumbing as well when my dad was with my sister so we had a hard evening! It just felt like the universe hated us!
Let’s not begin to talk about traffic at the hospital and people not being patient when you are trying to transfer from the car to a wheelchair! That was the cherry on top of it all.
I’m pretty sure my face had the expression of I HATE EVERYONE DONT TALK TO ME RIGHT NOW. Ha, ha gotta love it.
I know it’s hard to see the good in the bad but I tried. I still had a lot to be thankful for, Most importantly I had my parents, my sister, and amazing friends and family reaching out to us. Always asking if we needed anything, and sending prayers and positivity our way.
We also had a way of getting to and from the hospital, a home to go to, money in case we needed to stop to buy food on the way and most importantly they were treating my sister and helping her get better.
I’m thankful for what we have but I Want this to be over, I don’t want to be sick nor do I want my sister to be sick either ( I don’t want anyone to be sick!).I hate having to read other sick people losing the battle to chronic illnesses.
I hope one day all of us with a chronic illness get our miracle so we don’t have to live such complicated lives.